Avah is a child cancer survivor

HOME
My Story
Avah's favs
AWARENESS LINKS

CUREFEST 2022

CUREFEST 2022CUREFEST 2022CUREFEST 2022
HOME
My Story
Avah's favs
AWARENESS LINKS
More
  • HOME
  • My Story
  • Avah's favs
  • AWARENESS LINKS
  • Sign In
  • Create Account

  • Orders
  • My Account
  • Signed in as:

  • filler@godaddy.com


  • Orders
  • My Account
  • Sign out

CUREFEST 2022

CUREFEST 2022CUREFEST 2022CUREFEST 2022

Signed in as:

filler@godaddy.com

  • HOME
  • My Story
  • Avah's favs
  • AWARENESS LINKS

Account


  • Orders
  • My Account
  • Sign out


  • Sign In
  • Orders
  • My Account

wilms' tumor also called nephroblastoma

Before Diagnosis

Tests and Results

Before Diagnosis

Just the 3 of us on a normal regular busy day with mom and dad.  We are an active family that makes every day count.

We go places and do many things with family and friends.


I am the oldest and then Nova and then Milo.

What is this?

Tests and Results

Before Diagnosis

One day after having painful headaches for months and upset tummies for months and I also had been throwing up for a while, mommy took me to the doctor.  The Doctor first said I had an infection then she said I had food allergies to gluten and dairy and processed foods. That diagnosis didn't last long because soon I was having a lot of blood in my urine but no pain at all.  Finally I had to have a dreaded blood test and after a physical exam on my tummy along with an MRI the Doctors told my mommy what they were pretty sure was a Wilms Tumor in my left kidney.

Tests and Results

Tests and Results

Surgery and Treatment Begins

Child Life Specialist Brianna was with me during some really hard moments. 

Surgery and Treatment Begins

Surgery and Treatment Begins

Surgery and Treatment Begins

 On December 7, 2020 I had my left kidney removed and there was a Wilm's Tumor inside the kidney just like they figured.

It was pretty big but fully intact.  I had a port put in so that the chemo can be given to me that way.  I had to have 6 months of treatment.  I was scared but I knew it was going to save me. 

After about 3 chemo treatments my hair began to fall out. 

Chemotherapy

Surgery and Treatment Begins

Chemotherapy

I

I had clinic every Monday and in clinic I would have to be accessed and my port would be flushed and then I would get my chemo medicines. It was tough in the beginning but the nurses all made me feel safe and calm. I got this! 

My hair is totally gone and so are my eye brows and lashes.

Lung Surgery

Surgery and Treatment Begins

Chemotherapy

After 6 chemo treatments the 6 spots on my lungs showed no change so we all agreed to surgically remove them. Pathology report showed no cancer in those spots. That was a tough surgery. Also, I have to take an antibiotic and anti-nausea medicine plus pain relivers and sometimes a sleep gummy because I would get a little bit anxious when I would think too much.

Lung Healing

Chemotherapy Almost Over

Chemotherapy Almost Over

When my scans showed 6 spots on my lungs I had a surgery to remove them. I had two tubes coming out of each side of my ribs and it was so painful. I couldn't move much for a few days but eventually I healed and pathology reported no cancer on the spots that were removed. The anxiety I had during this time was a lot and I was able to talk to a really nice Dr. that helped me get through those rough mental attacks.  It was not good to sit and think and think.  Sundays were my worst thinking days. 

Chemotherapy Almost Over

Chemotherapy Almost Over

Chemotherapy Almost Over

sh

Chemotherapy was on Mondays and sometimes I would have to go to the hospital because the chemo is poison and it would make me very sick.  I lost a lot of weight and all of my hair and I would have bone pain and mouth sores so bad I wasn't able to eat.  Dr. Morimoto suggested a feeding tube and I didn't want that so I really did my best and I didn't have to get that.

I had a total of 24 chemotherapy treatments.

Ringing the Bell

Chemotherapy Almost Over

After Treatment Scans

afafae

June 28, 2021 was my last day of chemotherapy and I got to ring the bell. I was soooooo sooo super excited!!  

There is a sweet video on my fav's page.

After Treatment Scans

After Treatment Scans

After Treatment Scans

We got the scan results that we prayed so hard for!  I have no cancer cells in my healthy kidney and no cancer cells in my lungs and no cancer cells in my lymph nodes. You all really helped me stay so positive. 

Meeting New Friends

After Treatment Scans

Meeting New Friends

At Curefest I met so many special forever friends.  I had the best time and I can't wait to go next year and see my friends, again. 

 This is Ally, Ava, Avah, Emily & Emma

  • Ally is 2x survivor of Stage 4 Alveolar Rhabdomyosarcoma. 
  • Ava is in remission from twice fighting Bilateral Wilm's Tumor; Ava has half a kidney and she is one amazing dancer even tho she was told not to dance.
  • Avah is in remission from Stage 4 Wilm's Tumor and has only 1 kidney.
  • Emma is Ava's big sister and an advocate for childhood cancer w/ Blaser Foundation.
  • Emily is child cancer advocate and she is AWESOME and is our forever friend... forever.

Best Weekend Ever

After Treatment Scans

Meeting New Friends

Go to the next page of my website and watch the videos of the best weekend ever!!!!!


Copyright © 2023 #AvahStrong - All Rights Reserved.

  • HOME
  • My Story
  • Avah's favs

Powered by GoDaddy